Five-year-old Holly Nayler from Essex has CLN2 Batten disease, a rare and fatal form of childhood dementia that causes rapid neurological decline and frequent seizures. While an NHS-funded treatment cannot cure the condition, it has slowed the loss of her abilities. As access to the drug faces uncertainty, her family is calling for awareness and continued support.
Five-year-old Holly Nayler from Essex has CLN2 Batten disease, a rare and fatal form of childhood dementia that causes rapid neurological decline and frequent seizures. While an NHS-funded treatment cannot cure the condition, it has slowed the loss of her abilities. As access to the drug faces uncertainty, her family is calling for awareness and continued support.
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